Living with cystic fibrosis
Living with cystic fibrosis (Vivre) is a non-profit organization dedicated to improving the quality of life of individuals living with cystic fibrosis (CF) and providing support to their caregivers and families.
Our mission is to improve the quality of life of people living with cystic fibrosis, including families and immediate family members.
Concretely improve the quality of life of people living with cystic fibrosis (CF) in Quebec by strengthening the community, by offering relevant information and by building solid partnerships.
Respect : Placing people at the heart of our mission, taking into account the relationships with others for the sake of inclusion, dignity and consideration. Offer everyone the opportunity to express their full potential while considering the specificities of each person.
Justice : Promote, defend and enable equal opportunities, whether in terms of health (access to quality care, regardless of social, economic or demographic status), employment, access to housing, or any other field, avoiding any form of discrimination based on stereotypes.
Mutual aid : Promote values such as collaboration and teamwork to offer spontaneous, positive and caring support to each member of our community. Ensure personal or collective well-being, and promote the development of each person through effective collaborative practices coupled with a keen sense of altruism.
Integrity : Focusing on consistency, transparency, authenticity and honesty in our commitments and responsibilities to our community, as well as in all areas of our activities, in order to create a strong and lasting relationship with all our stakeholders.
Inclusion: Promote openness, welcome and respect for all people living with cystic fibrosis and their loved ones, taking into account their diversity and backgrounds, in order to build an inclusive community that is representative of all its voices.
40 years of solidarity, listening, and action.
A journey guided by people, supported by the community and focused on the future.
From the Provincial Committee for Adult Cystic Fibrosis to Living with Cystic Fibrosis.
Our Team
Executive team
Gabrielle Phaneuf
Alexandra Payette
Nouha Cherkaoui
Karyne Vaillant
François Jean
Board of Directors
Miguel Moisan-Poisson
Anne-Marie Thériault
Julie Morel
Carol Ann Kairns
Mario Bertrand
Jordan Medeiros
Benoît Paquette
Christopher Daunais
Isabelle Julien
Documents
Here you will find the main documents and publications produced by Living with Cystic Fibrosis. They present our actions, our results and the realities experienced by those affected, in order to help better understand the issues related to cystic fibrosis in Quebec. Vivre avec la fibrose kystique. Ils présentent nos actions, nos résultats et les réalités vécues par les personnes atteintes, afin de mieux comprendre les enjeux liés à la fibrose kystique au Québec.
Recognitions and outstanding figures
Many individuals, families, volunteers and partners have made their mark on the history of Living with Cystic Fibrosis. This section highlights their journeys, contributions, and lasting impact within our community as a way of recognition and gratitude.Vivre avec la fibrose kystique. Cette section met en lumière leurs parcours, leurs contributions et leur impact durable au sein de notre communauté, en guise de reconnaissance et de gratitude.
Take action
Everyone can play a role in improving the daily lives of people with cystic fibrosis. Whether through a donation, volunteering or sharing information, your commitment allows us to defend the rights of our community and maintain essential services throughout Quebec.
All the ways to get involved
Thanks to Our Partners
