News

Tenue le 7 avril 2026, cette rencontre virtuelle présentée par Finandicap a permis à la communauté FK de mieux comprendre les mesures fiscales et ressources financières disponibles en période d’impôts. Avec 33 inscriptions et 13 participants, le webinaire a mis en lumière l’importance du Crédit d’impôt pour personnes handicapées (CIPH), véritable porte d’entrée vers de nombreux programmes comme la PCPH et le REEI, la mesure fiscale la plus avantageuse au Canada. Les échanges ont aussi porté sur les soins thérapeutiques reconnus pour la fibrose kystique, les démarches à entreprendre, le rôle des proches aidants et l’importance de produire ses impôts chaque année, même sans revenu. Une ressource essentielle pour favoriser l’autonomie financière et l’accès aux droits de la communauté FK.

Gabrielle Phaneuf and Jeffrey Carpentier tell the story of the creation of FK en musique, an NPO that combines music and philanthropy to raise awareness about cystic fibrosis and fund the cause through innovative events.

Presentation of the new issue of SVB, marked by team changes, new projects and a special report on the psychological impacts of Trikafta.

Announcement of the new executive director, Mario Bertrand, who wants to strengthen the organization's funding in order to expand the services and programs offered, while respecting the mission and values of Living with Cystic Fibrosis.

The month of May is dedicated to raising awareness about cystic fibrosis by informing, celebrating the community, and encouraging donations to support hope and research.

Vaccination against COVID-19 in Quebec is free, progressive and prioritized for people at risk, including people living with a chronic disease such as cystic fibrosis, in order to reduce complications and mortality.

Every year, the Vertex Foundation offers scholarships to people living with cystic fibrosis and their loved ones to support their college, university, or higher education in Canada.

The curfew in force in Quebec applies to people living with cystic fibrosis, specifying the authorized exceptions and the importance of having written proof during essential travel

Emergency financial assistance in the form of $50 grocery cards is available to people financially affected by COVID-19, in priority to those without income or government benefits.

Quebec is finally implementing neonatal screening for cystic fibrosis, a major advance that will allow for earlier diagnosis and better health outcomes in the long term.

Health Canada has approved SYMDEKO™, a treatment that targets the genetic cause of cystic fibrosis, opening access to a new treatment option for some people as young as 12 years of age, subject to reimbursement.

On the occasion of National Organ Donor Week, Transplant Québec and a transplant recipient recall that, despite major advances, organ donation remains essential to save more lives.

A study shows that BMI and pre-transplant nutritional support do not have a significant impact on short-term post-transplant outcomes in people with cystic fibrosis.

A review of the scientific advances presented in 2015 highlights the progress of therapies targeting CFTR, in particular Orkambi, while highlighting the challenges related to their effectiveness, accessibility and cost.