Tag:

Health

Cystic fibrosis nutrition must be personalized to compensate for increased energy expenditure and possible malabsorption, by focusing on a richer, more flexible and pleasant diet, supported if necessary by enzymes and nutritional support.

In this interview, Jean-Christophe Réhel discusses the genesis of What we breathe about Tatouine, the place of cystic fibrosis in his writing, the balance between fiction and autobiography, and the use of humor and popular culture to tell the story of the disease without reducing it.

Manon Goulet testifies that it is possible to live with cystic fibrosis into your sixties by adapting to the disease, redefining your priorities and finding hope thanks to new treatments.

Mélissa Doyon recounts her lung transplant journey, marked by waiting, surgery, major complications and a lot of resilience, to show that with patience and perseverance, the transplant can offer a new quality of life despite the challenges.

This study shows that delayed access to Trikafta would lead to more serious lung diseases, more exacerbations, more deaths, and significantly lower life expectancy in people with cystic fibrosis compared to early access.

The call for applications for the 2020 Michel Paquette Prize is launched in order to recognize a person or organization that has made a remarkable contribution to the field of cystic fibrosis, with a presentation scheduled for October 2020.