Tag:

Homage

Eric describes the multiple bereavements experienced with cystic fibrosis: the announcement, the loss of a “normal” life, the overwhelming role of caregiving, letting go as an adult and, sometimes, the ultimate bereavement. A text about love, powerlessness and the lasting marks of mourning.

The death of Thérèse Dion at 92 rekindles the Dion family's connection to cystic fibrosis, a cause supported in memory of their niece who died from the disease.

Two distinctions are awarded in 2019 to recognize the exceptional commitment of individuals and organizations who have made an impact in the cystic fibrosis community, as well as the remarkable contribution of a person living with the disease.

Christian Auclair, a committed communicator and a leading figure in the field of cystic fibrosis, passed away on June 16, 2019 after devoting many years to informing, raising awareness and creating relationships in Quebec and internationally.

CEO Tomy-Richard Leboeuf-McGregor died after several days in a coma, leaving a significant impact within the cystic fibrosis community.