Tag:

Chronic illness

Quebec study drawing up a current socio-demographic portrait of people living with cystic fibrosis in order to better adapt services and defend their rights.

This article explores the psychological and identity upheavals experienced by people with cystic fibrosis in the Trikafta era, between immense hope, social pressures, past griefs and the need to reinvent themselves in the face of a suddenly possible future.

This article explores how cystic fibrosis can influence body image and suggests concrete ways to develop a more caring, conscious and peaceful relationship with your body despite the disease.

A mother's testimony frankly describing the exhaustion, emotional rollercoasters, and lack of support experienced when caring for a child with cystic fibrosis.

Eric describes the multiple bereavements experienced with cystic fibrosis: the announcement, the loss of a “normal” life, the overwhelming role of caregiving, letting go as an adult and, sometimes, the ultimate bereavement. A text about love, powerlessness and the lasting marks of mourning.

Amélie recounts the transition to adulthood with cystic fibrosis: more autonomy, a significant hospital transfer, new responsibilities, but also the strength to adapt and move forward with courage.