Tag:

Caregivers

The president highlights the remarkable evolution of the CF community since the foundation of the organization, announces the official opening of membership for the families of people with CF and invites the entire community to become a member in order to strengthen participation, representation and collective support.

A mother's testimony frankly describing the exhaustion, emotional rollercoasters, and lack of support experienced when caring for a child with cystic fibrosis.

Eric describes the multiple bereavements experienced with cystic fibrosis: the announcement, the loss of a “normal” life, the overwhelming role of caregiving, letting go as an adult and, sometimes, the ultimate bereavement. A text about love, powerlessness and the lasting marks of mourning.

During adolescence, risk taking is part of development, but for young people living with cystic fibrosis, it requires careful support to protect physical and psychological health.

Janie tells her love story with a spouse suffering from cystic fibrosis, a journey made of challenges, fertility, parenting and above all a conscious choice to love and live fully in the present.

A couple tells the story of waiting for a lung transplant, the call that changes everything, and the strength of letting go when life offers a second chance.