Tag:

Hope

A moving testimony of a first IVF experienced with cystic fibrosis, between hopes, medical trials, embryonic failures and resilience in the face of waiting and uncertainty.

The inspiring story of Marc-Antoine Pelège, an athlete and osteopath living with cystic fibrosis, who tells the story of his ascent of Kilimanjaro step by step as a symbol of overcoming, resilience and hope for the entire CF community.

This article explores the psychological and identity upheavals experienced by people with cystic fibrosis in the Trikafta era, between immense hope, social pressures, past griefs and the need to reinvent themselves in the face of a suddenly possible future.

Sophie Vaillancourt testifies to the pain and feeling of injustice experienced by people with class 1 mutations, for whom CFTR modulators are not an option, while calling for equitable access to treatments for those who can benefit from them.

Research has profoundly improved the prognosis of cystic fibrosis thanks to CFTR modulators, with new hope for all patients despite challenges in accessing treatments.

Janie tells her love story with a spouse suffering from cystic fibrosis, a journey made of challenges, fertility, parenting and above all a conscious choice to love and live fully in the present.