Editor's note

Something new!

Dear readers, it is always with pleasure that we offer you our latest issue of SVB.

During this year, we had a lot of movements within our organization: departures, but also arrivals. First of all, I want to thank Josée Côté and Valérie Lacroix for the work we were able to do together and for the good times we shared, wishing them every success in their new adventures.

I also welcome the members of our new work team. Mario has become our new CEO, and will have the difficult task of finding the funding necessary to achieve our ambitions. Amélie, whom you already know for her involvement in the journal, joined us on the work team, and is now in charge of the organization's communications. Finally, Viviane, formerly the Vice President of the Board of Directors, provides us with administrative support. There is no doubt that we will be able to do great things with this team.

In this issue, we decided to highlight the NPO FK in music, by introducing you to its two founders, Gabrielle and Jeffrey, who agreed to answer our questions for a most interesting interview. As usual, we offer you various testimonies, as well as an article on cystic fibrosis research and health issues.

In addition, we made the decision to focus on the psychological effects of Trikafta. To do this, we were able to contact Jaquelien Noordhoek, president of CF Europe, and Anna Georgiopoulos, a Boston researcher. They accepted to participate in our review and we thank them warmly. In another subject, Marie-Michèle Ricard, psychotherapist, presents us with an article on body image.

For our part, we have completed the compilation of the data collected as part of our questionnaire to know the socioeconomic profile of the CF population in Quebec. We've provided you with an infographic of the highlights, but you can find the full report here.

We hope you enjoy reading this issue. Happy reading!

Sébastien Puli

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