News

May is Cystic Fibrosis Awareness Month: INFORM, CELEBRATE, GIVE

May 1, 2022

Did you know that?

Once again this year, and throughout the month of May, we will increase our actions to raise awareness about cystic fibrosis (CF), but above all, the impact that the disease has on the lives of those affected and those around them.

For the occasion, we have chosen 3 concepts that are essential in our lives.

Follow us and, together, let's take advantage of the month of May to INFORM, CELEBRATE and GIVE, so that hope always remains!

Why is it important?
*Because cystic fibrosis is the most common fatal genetic disorder among Canadian children and young adults.
*Because in Quebec, there are more than 1200 families who live daily with a person suffering from cystic fibrosis. And that requires adaptation, time, kindness, money, but also requires a lot of hope.
*Because living with cystic fibrosis means having hope that, despite everything, time will allow us to study, work, love and, perhaps, start a family and watch it grow.
*Because it is thanks to generous donations, money, time and the sharing of reliable information, among others, that we can hope for and plan for tomorrow.

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Retour sur le webinaire « Impôts et mesures fiscales : des ressources clés pour la communauté FK »

Tenue le 7 avril 2026, cette rencontre virtuelle présentée par Finandicap a permis à la communauté FK de mieux comprendre les mesures fiscales et ressources financières disponibles en période d’impôts. Avec 33 inscriptions et 13 participants, le webinaire a mis en lumière l’importance du Crédit d’impôt pour personnes handicapées (CIPH), véritable porte d’entrée vers de nombreux programmes comme la PCPH et le REEI, la mesure fiscale la plus avantageuse au Canada. Les échanges ont aussi porté sur les soins thérapeutiques reconnus pour la fibrose kystique, les démarches à entreprendre, le rôle des proches aidants et l’importance de produire ses impôts chaque année, même sans revenu. Une ressource essentielle pour favoriser l’autonomie financière et l’accès aux droits de la communauté FK.

April 9, 2026

Interview with Gabrielle and Jeffrey

Gabrielle Phaneuf and Jeffrey Carpentier tell the story of the creation of FK en musique, an NPO that combines music and philanthropy to raise awareness about cystic fibrosis and fund the cause through innovative events.

February 1, 2023

Editor's note

Presentation of the new issue of SVB, marked by team changes, new projects and a special report on the psychological impacts of Trikafta.

February 1, 2023

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