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Santé Vous Bien Blog

General

Message from the Presidency: SVB 2023

The president highlights the remarkable evolution of the CF community since the foundation of the organization, announces the official opening of membership for the families of people with CF and invites the entire community to become a member in order to strengthen participation, representation and collective support.

February 1, 2023
General

Message from the director: SVB number 45

The director highlights the resilience of the CF community in the face of the pandemic, the historical access to Trikafta in Quebec, the evolution of the VAFK team and the organization's renewed commitment to supporting members, in view of the 40th anniversary celebrations in 2025.

January 27, 2022
General

CF Community Needs Analysis Survey

Living with Cystic Fibrosis is launching a survey to better understand the needs of the CF community and adapt its services, with a draw for a $50 gift certificate to be won.

October 11, 2023
Interviews and testimonies

Interview with Jean-Christophe Réhel

In this interview, Jean-Christophe Réhel discusses the genesis of What we breathe about Tatouine, the place of cystic fibrosis in his writing, the balance between fiction and autobiography, and the use of humor and popular culture to tell the story of the disease without reducing it.

September 24, 2021
General

Word from the president

In a context of pandemic and uncertainty, this word highlights the resilience, solidarity and unity of a community that adapts, helps each other and comes out stronger.

September 23, 2020
General

Michel Paquette Prize 2020: submit applications

The call for applications for the 2020 Michel Paquette Prize is launched in order to recognize a person or organization that has made a remarkable contribution to the field of cystic fibrosis, with a presentation scheduled for October 2020.

July 28, 2020
Organ donation

The 2015 Michel Paquette Prize awarded to Harold Gagné

In 2015, Living with Cystic Fibrosis awarded the Michel Paquette Prize to journalist Harold Gagné to highlight his commitment to organ donation and to raising awareness about cystic fibrosis.

September 28, 2015
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News

Interview with Gabrielle and Jeffrey

Gabrielle Phaneuf and Jeffrey Carpentier tell the story of the creation of FK en musique, an NPO that combines music and philanthropy to raise awareness about cystic fibrosis and fund the cause through innovative events.

February 1, 2023
News

Editor's note

Presentation of the new issue of SVB, marked by team changes, new projects and a special report on the psychological impacts of Trikafta.

February 1, 2023
News

Announcement of the new director: Mario Bertrand

Announcement of the new executive director, Mario Bertrand, who wants to strengthen the organization's funding in order to expand the services and programs offered, while respecting the mission and values of Living with Cystic Fibrosis.

February 1, 2023
News

May is Cystic Fibrosis Awareness Month: INFORM, CELEBRATE, GIVE

The month of May is dedicated to raising awareness about cystic fibrosis by informing, celebrating the community, and encouraging donations to support hope and research.

May 1, 2022
News

Campaign “I'm filling a Christmas stocking...”

December 1, 2021
News

Vaccination and cystic fibrosis

Vaccination against COVID-19 in Quebec is free, progressive and prioritized for people at risk, including people living with a chronic disease such as cystic fibrosis, in order to reduce complications and mortality.

April 8, 2021
Grants

Vertex Foundation Scholarship

Every year, the Vertex Foundation offers scholarships to people living with cystic fibrosis and their loved ones to support their college, university, or higher education in Canada.

January 21, 2021
News

Curfew and cystic fibrosis

The curfew in force in Quebec applies to people living with cystic fibrosis, specifying the authorized exceptions and the importance of having written proof during essential travel

January 7, 2021
News

Health Canada approves SYMDEKO™

Health Canada has approved SYMDEKO™, a treatment that targets the genetic cause of cystic fibrosis, opening access to a new treatment option for some people as young as 12 years of age, subject to reimbursement.

June 28, 2018

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