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Santé Vous Bien Blog

General

Message from the director: SVB number 45

The director highlights the resilience of the CF community in the face of the pandemic, the historical access to Trikafta in Quebec, the evolution of the VAFK team and the organization's renewed commitment to supporting members, in view of the 40th anniversary celebrations in 2025.

January 27, 2022
General

COVID-19 meets cystic fibrosis, for better or for worse?

The data suggests that, despite common inflammatory mechanisms, people with cystic fibrosis may present a form of COVID-19 that is often less severe than expected, possibly thanks to cellular characteristics of CF and the potential protective effect of CFTR modulators.

January 5, 2021
Health issues

Health Questions: Inhaled Medication

A clear reminder of the recommended order to optimize the effectiveness of inhaled treatments and medications for people living with cystic fibrosis, from bronchodilators to antibiotics.

November 5, 2018
Research

Research and Cystic Fibrosis: 2022 Update

This 2022 update presents the major advances in cystic fibrosis research, marked by the arrival of CFTR modulators (ETI/Trikafta), their major benefits, emerging clinical challenges and research paths for ineligible people.

February 1, 2023
Psychology

CFTR modulators and mental health

This article takes stock of the possible links between CFTR modulators, in particular Trikafta, and mental health, by exploring indirect psychological effects, possible biological mechanisms, drug interactions, and the importance of individualized follow-up.

February 1, 2023
Cystic fibrosis

Trikafta and the identity crisis

This article explores the psychological and identity upheavals experienced by people with cystic fibrosis in the Trikafta era, between immense hope, social pressures, past griefs and the need to reinvent themselves in the face of a suddenly possible future.

February 1, 2023
Results for the category
Treatments
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News

News

Health Canada approves SYMDEKO™

Health Canada has approved SYMDEKO™, a treatment that targets the genetic cause of cystic fibrosis, opening access to a new treatment option for some people as young as 12 years of age, subject to reimbursement.

June 28, 2018
Research

Cystic Fibrosis Research: Major Advances and Persistent Challenges in 2015

A review of the scientific advances presented in 2015 highlights the progress of therapies targeting CFTR, in particular Orkambi, while highlighting the challenges related to their effectiveness, accessibility and cost.

January 27, 2016

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