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Fibrose kystique

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Fibrose kystique
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Santé Vous Bien Blog

General

Message from the director: SVB number 45

The director highlights the resilience of the CF community in the face of the pandemic, the historical access to Trikafta in Quebec, the evolution of the VAFK team and the organization's renewed commitment to supporting members, in view of the 40th anniversary celebrations in 2025.

January 27, 2022
Interviews and testimonies

Testimonial: The last miles of pregnancy

An intimate and touching story of the very end of a twin pregnancy resulting from IVF, between physical discomfort, gratitude, impatience and the joy of waiting for two healthy little boys.

June 12, 2016
Interviews and testimonies

Testimonial: a complicated life

A moving testimony of a man suffering from cystic fibrosis, diagnosed late, transplanted lungs, and lucidly recounting the challenges, losses and hopes that marked his life.

February 1, 2023
General

Word from the president 2

A message from the president that highlights the current issues of cystic fibrosis, pays tribute to the community and reaffirms the organization's commitment to those affected.

January 27, 2022

The story of cystic fibrosis through the women and men who wrote it

A historical look at the evolution of cystic fibrosis through the researchers, clinicians, and committed individuals who have shaped its understanding and management.

February 9, 2022
Interviews and testimonies

Testimonial: Coming of age with CF, a great challenge!

Amélie recounts the transition to adulthood with cystic fibrosis: more autonomy, a significant hospital transfer, new responsibilities, but also the strength to adapt and move forward with courage.

March 24, 2022
Results for the category
Fibrose kystique
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News

News

Retour sur le webinaire « Impôts et mesures fiscales : des ressources clés pour la communauté FK »

Tenue le 7 avril 2026, cette rencontre virtuelle présentée par Finandicap a permis à la communauté FK de mieux comprendre les mesures fiscales et ressources financières disponibles en période d’impôts. Avec 33 inscriptions et 13 participants, le webinaire a mis en lumière l’importance du Crédit d’impôt pour personnes handicapées (CIPH), véritable porte d’entrée vers de nombreux programmes comme la PCPH et le REEI, la mesure fiscale la plus avantageuse au Canada. Les échanges ont aussi porté sur les soins thérapeutiques reconnus pour la fibrose kystique, les démarches à entreprendre, le rôle des proches aidants et l’importance de produire ses impôts chaque année, même sans revenu. Une ressource essentielle pour favoriser l’autonomie financière et l’accès aux droits de la communauté FK.

April 9, 2026
News

Editor's note

Presentation of the new issue of SVB, marked by team changes, new projects and a special report on the psychological impacts of Trikafta.

February 1, 2023
Research

Quebec announces neonatal screening for cystic fibrosis

Quebec is finally implementing neonatal screening for cystic fibrosis, a major advance that will allow for earlier diagnosis and better health outcomes in the long term.

October 12, 2018

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