Tag:

Fibrose kystique

Alexie shares the anxiety experienced during long cystic fibrosis hospitalizations and shares simple tips (personal items, snacks, distractions) to better manage stress and isolation.

Pierre-Alexandre Tremblay shares his inspiring journey as a single man living with cystic fibrosis, lung transplant recipient, who chose adoption as a path to parenthood and testifies to the challenges, emotions and learnings related to this life project.

Cystic fibrosis nutrition must be personalized to compensate for increased energy expenditure and possible malabsorption, by focusing on a richer, more flexible and pleasant diet, supported if necessary by enzymes and nutritional support.

Some essential oils have demonstrated strong antibacterial activity in vitro against resistant strains of Staphylococcus aureus and Pseudomonas aeruginosa in patients with cystic fibrosis, suggesting a complementary therapeutic potential that should be explored with caution.

This article provides a global portrait of the future of cystic fibrosis care, marked by major advances (CFTR modulators, early diagnosis, multidisciplinary care) but hampered by strong inequalities in access to treatments and growing challenges related to the aging of patients.

The death of Thérèse Dion at 92 rekindles the Dion family's connection to cystic fibrosis, a cause supported in memory of their niece who died from the disease.