Tag:

Research

Quebec study drawing up a current socio-demographic portrait of people living with cystic fibrosis in order to better adapt services and defend their rights.

The editor takes stock of a significant year for the FK community, marked by access to Trikafta and an issue rich in testimonies, expertise and scientific advances.

Sophie Vaillancourt testifies to the pain and feeling of injustice experienced by people with class 1 mutations, for whom CFTR modulators are not an option, while calling for equitable access to treatments for those who can benefit from them.

A clinician traces the evolution of cystic fibrosis, from rudimentary treatments and very limited survival to major advances in care, research and quality of life, while stressing that despite remarkable progress, the fight is not yet over.

New emerging pathogens in cystic fibrosis (MRSA, Stenotrophomonas maltophilia, and Achromobacter xylosoxidans) are becoming more and more frequent, but their exact impact on lung function and survival is still partially unclear.

An overview of major research advances in 2014, marking the transition to treatments that directly target the genetic defect in cystic fibrosis.