Tag:

Chronic illness

Eric describes the multiple bereavements experienced with cystic fibrosis: the announcement, the loss of a “normal” life, the overwhelming role of caregiving, letting go as an adult and, sometimes, the ultimate bereavement. A text about love, powerlessness and the lasting marks of mourning.

Amélie recounts the transition to adulthood with cystic fibrosis: more autonomy, a significant hospital transfer, new responsibilities, but also the strength to adapt and move forward with courage.

Karine tells how, despite a high-risk pregnancy linked to cystic fibrosis and numerous medical challenges, becoming a mother gave her hope, strength and health that she hadn't experienced in years.

Cystic fibrosis does not prevent adoption, but health and medical advice are decisive.

An interview that highlights the key role of social work in the psychosocial support of people living with cystic fibrosis.

Diagnosed at 58 after a life marked by unexplained symptoms, Claire testifies to atypical cystic fibrosis, diagnostic error and the importance of raising awareness about this little-known form of the disease.