Message from the Presidency: SVB 2023
The president highlights the remarkable evolution of the CF community since the foundation of the organization, announces the official opening of membership for the families of people with CF and invites the entire community to become a member in order to strengthen participation, representation and collective support.
Last October, Living with Cystic Fibrosis celebrated its 37E birthday. What pride!
When it was created, the median survival age for people living with cystic fibrosis was around 25 years old. The founding members of our organization were then young adults with CF who had just emerged from their adolescent crisis! In its beginnings, our organization aimed, among other things, to equip our members (exclusively adults with CF in Quebec) to enable them to develop their financial and romantic autonomy as well as that of taking care of their health. Our organization responded to their need to have their independence recognized from their parents!
Since then, water has flowed under the bridge and we have become successful adults; we can look forward to studying, having a fulfilling job, traveling, having friends, a life as a couple, and a loving and caring environment. We can even become parents in turn (I myself have the happiness of being the mother of 4 children). We can recognize that globally, our realities have evolved positively.
As mentioned in my post in the summer of 2022 Vivre Express magazine, our organization experienced a historic moment during our last annual general meeting:
“Since April 2022, members who are close to a CF person can become a member and benefit from our services! May this openness allow you to be surrounded and included! ”
Today, I would like to tell you the advantages of being a member with us:
- To be invited to each annual general meeting;
- Speak at these meetings;
- To vote at these meetings;
- Submit an application for a post of director, and possibly be elected;
- Receive the organization's publications first;
- Receive all the important information about cystic fibrosis first;
- Be the first to receive invitations to conferences, information/education activities, workshops, symposiums or other events organized by the organization;
- Have access to our financial aid and support programs.
So whether you are living with cystic fibrosis or are part of the immediate family of someone with CF (parents/in-laws, children, legal guardian, designated caregivers), you can join us absolutely free of charge!
Do not hesitate any longer, fill out the online registration form: [https://vivreaveclafibrosekystique.com/devenir-membre]!
What a pleasure we will have to better know the needs of the people around people with CF in Quebec and to discuss our respective realities!
Charlène Blais
General
Message from the director: SVB number 45
The director highlights the resilience of the CF community in the face of the pandemic, the historical access to Trikafta in Quebec, the evolution of the VAFK team and the organization's renewed commitment to supporting members, in view of the 40th anniversary celebrations in 2025.
Thanks to Our Partners
