Category:
General

Results for the category
General
in the

Santé Vous Bien Blog

General

Message from the Presidency: SVB 2023

The president highlights the remarkable evolution of the CF community since the foundation of the organization, announces the official opening of membership for the families of people with CF and invites the entire community to become a member in order to strengthen participation, representation and collective support.

February 1, 2023
General

Message from the director: SVB number 45

The director highlights the resilience of the CF community in the face of the pandemic, the historical access to Trikafta in Quebec, the evolution of the VAFK team and the organization's renewed commitment to supporting members, in view of the 40th anniversary celebrations in 2025.

January 27, 2022
General

COVID-19 meets cystic fibrosis, for better or for worse?

The data suggests that, despite common inflammatory mechanisms, people with cystic fibrosis may present a form of COVID-19 that is often less severe than expected, possibly thanks to cellular characteristics of CF and the potential protective effect of CFTR modulators.

January 5, 2021
Cystic fibrosis

Cystic Fibrosis: From Top to Top

The Fall 2024 issue of Santé Vous Bien highlights the inspiring journeys of people living with cystic fibrosis, from climbing Mount Kilimanjaro to lung transplantation, sports, literature, and research to show that CF does not set limits to the heights that can be reached.

September 26, 2024
Cystic fibrosis

The story, step by step, of the rise of Marc-Antoine Pelège, athlete and CF osteopath

The inspiring story of Marc-Antoine Pelège, an athlete and osteopath living with cystic fibrosis, who tells the story of his ascent of Kilimanjaro step by step as a symbol of overcoming, resilience and hope for the entire CF community.

October 1, 2024
General

CF Community Needs Analysis Survey

Living with Cystic Fibrosis is launching a survey to better understand the needs of the CF community and adapt its services, with a draw for a $50 gift certificate to be won.

October 11, 2023
Cystic fibrosis

Trikafta and the identity crisis

This article explores the psychological and identity upheavals experienced by people with cystic fibrosis in the Trikafta era, between immense hope, social pressures, past griefs and the need to reinvent themselves in the face of a suddenly possible future.

February 1, 2023
General

Editor's note

The editor takes stock of a significant year for the FK community, marked by access to Trikafta and an issue rich in testimonies, expertise and scientific advances.

February 1, 2023
General

Word from the president 2

A message from the president that highlights the current issues of cystic fibrosis, pays tribute to the community and reaffirms the organization's commitment to those affected.

January 27, 2022
Health issues

Health questions

A series of clear medical answers to common questions from people living with cystic fibrosis, addressing fermented foods, kidney stones, thrush, halitosis, premenopause, and precautions before surgery.

February 17, 2022
General

Word from the president

In a context of pandemic and uncertainty, this word highlights the resilience, solidarity and unity of a community that adapts, helps each other and comes out stronger.

September 23, 2020
General

Michel Paquette Prize 2020: submit applications

The call for applications for the 2020 Michel Paquette Prize is launched in order to recognize a person or organization that has made a remarkable contribution to the field of cystic fibrosis, with a presentation scheduled for October 2020.

July 28, 2020
General

Coronavirus: Recommendations from your pharmacy

Pharmacies recommend limiting renewals to one month, giving priority to delivery, paying without cash and contacting your doctor in case of drug shortages.

March 24, 2020
General

Protection measure: Coronavirus

Essential measures to be adopted during the COVID-19 pandemic to reduce the risks of infection, manage stress, and ensure continuity of care, especially for vulnerable people.

March 17, 2020
General

Death of Maman Dion

The death of Thérèse Dion at 92 rekindles the Dion family's connection to cystic fibrosis, a cause supported in memory of their niece who died from the disease.

January 17, 2020
General

Michel Paquette Prize and Marc Fortin Prize

Two distinctions are awarded in 2019 to recognize the exceptional commitment of individuals and organizations who have made an impact in the cystic fibrosis community, as well as the remarkable contribution of a person living with the disease.

September 25, 2019
General

Death of Christian Auclair

Christian Auclair, a committed communicator and a leading figure in the field of cystic fibrosis, passed away on June 16, 2019 after devoting many years to informing, raising awareness and creating relationships in Quebec and internationally.

June 21, 2019
General

Official press release: November 16, 2018

CEO Tomy-Richard Leboeuf-McGregor died after several days in a coma, leaving a significant impact within the cystic fibrosis community.

November 16, 2018
Cystic fibrosis

Neonatal screening for cystic fibrosis in Quebec: soon to be a reality?

Neonatal screening for cystic fibrosis would allow Quebec to diagnose the disease at birth, to establish early care and to prevent avoidable nutritional and pulmonary complications, as is already the case in the majority of western countries and Canadian provinces.

November 8, 2018
General

Breathing is life

A practical and educational text on deep physiological breathing and the importance of exhalation in supporting breath, tone and expectoration in people living with CF.

January 27, 2017
General

Understanding each other to better accept each other

A psychosocial reflection to better understand one's reactions to the disease and to find a balance between responsibility and self-compassion.

January 27, 2017
Interviews and testimonies

End-of-life care: a law born of dialogue

A human and political reflection on the end of life, autonomy and the role of elected officials in health.

January 27, 2017
General

Access to treatments: an incomplete advance

A critical look at therapeutic progress and inequalities in access to cystic fibrosis treatments.

January 27, 2017
General

Identical twins: why it's never a boy and a girl

Boy and girl? Not when the twins are the same! This text explains, in an accessible way, the different types of twin pregnancies, the role of genetics and the particularities of identical twins.

March 28, 2016
Interviews and testimonies

Interview with Richard Lavigne: inclusion, universal accessibility and social participation

November 15, 2015
General

The will: a matter of common sense

Writing a will and a mandate in case of incapacity makes it possible to ensure that your wishes are respected, to protect your loved ones and to avoid conflicts, delays and unnecessary costs.

October 12, 2015
General

Moving: the Quebec address change service

The Service Québecois de Changement d'Adresse (SQCA) makes it possible to simultaneously inform several government departments and agencies of a change of address, in a single simple and quick process.

October 12, 2015
Cystic fibrosis

History of Living with Cystic Fibrosis

A look back at the history of Living with Cystic Fibrosis, from its foundation to today, highlighting the evolution of its mission, its actions and its commitment to the community.

April 25, 2025
Results for the category
General
in

News

News

Announcement of the new director: Mario Bertrand

Announcement of the new executive director, Mario Bertrand, who wants to strengthen the organization's funding in order to expand the services and programs offered, while respecting the mission and values of Living with Cystic Fibrosis.

February 1, 2023
News

Vaccination and cystic fibrosis

Vaccination against COVID-19 in Quebec is free, progressive and prioritized for people at risk, including people living with a chronic disease such as cystic fibrosis, in order to reduce complications and mortality.

April 8, 2021
Financial aid

Emergency Relief Fund: Covid-19

Emergency financial assistance in the form of $50 grocery cards is available to people financially affected by COVID-19, in priority to those without income or government benefits.

May 18, 2020

Thanks to Our Partners