Category:
News

Results for the category
News
in the

Santé Vous Bien Blog

General

Message from the Presidency: SVB 2023

The president highlights the remarkable evolution of the CF community since the foundation of the organization, announces the official opening of membership for the families of people with CF and invites the entire community to become a member in order to strengthen participation, representation and collective support.

February 1, 2023
General

Message from the director: SVB number 45

The director highlights the resilience of the CF community in the face of the pandemic, the historical access to Trikafta in Quebec, the evolution of the VAFK team and the organization's renewed commitment to supporting members, in view of the 40th anniversary celebrations in 2025.

January 27, 2022
General

CF Community Needs Analysis Survey

Living with Cystic Fibrosis is launching a survey to better understand the needs of the CF community and adapt its services, with a draw for a $50 gift certificate to be won.

October 11, 2023
Interviews and testimonies

Interview with Jean-Christophe Réhel

In this interview, Jean-Christophe Réhel discusses the genesis of What we breathe about Tatouine, the place of cystic fibrosis in his writing, the balance between fiction and autobiography, and the use of humor and popular culture to tell the story of the disease without reducing it.

September 24, 2021
General

Word from the president

In a context of pandemic and uncertainty, this word highlights the resilience, solidarity and unity of a community that adapts, helps each other and comes out stronger.

September 23, 2020
General

Michel Paquette Prize 2020: submit applications

The call for applications for the 2020 Michel Paquette Prize is launched in order to recognize a person or organization that has made a remarkable contribution to the field of cystic fibrosis, with a presentation scheduled for October 2020.

July 28, 2020
Organ donation

The 2015 Michel Paquette Prize awarded to Harold Gagné

In 2015, Living with Cystic Fibrosis awarded the Michel Paquette Prize to journalist Harold Gagné to highlight his commitment to organ donation and to raising awareness about cystic fibrosis.

September 28, 2015
Results for the category
News
in

News

Research

Cystic Fibrosis Research: Major Advances and Persistent Challenges in 2015

A review of the scientific advances presented in 2015 highlights the progress of therapies targeting CFTR, in particular Orkambi, while highlighting the challenges related to their effectiveness, accessibility and cost.

January 27, 2016

Thanks to Our Partners