Category:

Health

A file that traces the major advances in lung transplantation for people with cystic fibrosis, highlighting their resilience, the evolution of transplant criteria and the major impact of treatments such as Trikafta.

This article explores how cystic fibrosis can influence body image and suggests concrete ways to develop a more caring, conscious and peaceful relationship with your body despite the disease.

A meta-analysis shows that binaural auditory beats have a moderate but significant positive effect on memory, attention, anxiety and pain perception, with an effectiveness depending mainly on the frequency used, the moment and the duration of exposure.

This article provides a global portrait of the future of cystic fibrosis care, marked by major advances (CFTR modulators, early diagnosis, multidisciplinary care) but hampered by strong inequalities in access to treatments and growing challenges related to the aging of patients.

Pharmacies recommend limiting renewals to one month, giving priority to delivery, paying without cash and contacting your doctor in case of drug shortages.

Essential measures to be adopted during the COVID-19 pandemic to reduce the risks of infection, manage stress, and ensure continuity of care, especially for vulnerable people.

Technology (pedometers, apps, active games) can promote physical activity in people with cystic fibrosis especially when combined with progressive goals, regular feedback, and strong social support.

In people with cystic fibrosis, antibiotic allergies are common due to repeated treatments, require a thorough diagnosis, and can sometimes be circumvented by desensitization when the antibiotic is essential.

Stress urinary incontinence is common in women with cystic fibrosis, linked to chronic cough, and is treated first by pelvic floor rehabilitation, with surgery being a last resort.

Vascular access is essential for intravenous treatment for cystic fibrosis, but each type of catheter has benefits and risks that should be well understood in order to prevent complications.

New emerging pathogens in cystic fibrosis (MRSA, Stenotrophomonas maltophilia, and Achromobacter xylosoxidans) are becoming more and more frequent, but their exact impact on lung function and survival is still partially unclear.

Hemoptysis, common in cystic fibrosis, corresponds to the expectoration of blood and requires a rapid evaluation in order to determine its severity and the course of action to be taken.

A clear overview of the main techniques and devices for decluttering the airways in cystic fibrosis, their advantages, limitations and clinical effectiveness.

An article that highlights the importance of deep physiological breathing and exhalation in improving respiratory function, reducing fatigue, and supporting the health of people living with cystic fibrosis.

People living with cystic fibrosis may have an increased risk of colorectal cancer with age, which is why appropriate and earlier detection is important according to certain recommendations.

Shingles is a reactivation of the chickenpox virus that causes a painful rash and can cause persistent pain, especially in immunocompromised people.

Dr. Yves Berthiaume looks back on his 25 years working with people living with cystic fibrosis and sends them a message of goodbye filled with recognition, humanity and gratitude.

Karine tells how, despite a high-risk pregnancy linked to cystic fibrosis and numerous medical challenges, becoming a mother gave her hope, strength and health that she hadn't experienced in years.

Charlène Blais testifies about her journey to motherhood with cystic fibrosis, between infertility, in vitro fertilization and adoption in Quebec.

A psychosocial reflection to better understand one's reactions to the disease and to find a balance between responsibility and self-compassion.

A critical look at therapeutic progress and inequalities in access to cystic fibrosis treatments.

A testimony about the fragile balance between self-care, motherhood, and cystic fibrosis in the first weeks with twins.

A candid testimony on the challenges of breastfeeding twins hospitalized separately and the assumed choice of mixed breastfeeding

A lucid and humorous testimony on the absurdities of the hospital system, and on the precious humanity of the nursing staff.

Diagnosed at 58 after a life marked by unexplained symptoms, Claire testifies to atypical cystic fibrosis, diagnostic error and the importance of raising awareness about this little-known form of the disease.

Despite a risky pregnancy marked by anxiety, this assessment looks back on a surprisingly smooth experience, physically and emotionally, until the very last weeks.

Interview with an ENT specialist in cystic fibrosis to better understand the role of the sinuses, common problems in people with CF and treatment options, including surgery.

A testimony on the conscious choice to live better at the end of a risky twin pregnancy, between improving health, good medical news and refocusing on well-being.

A testimony about the persistent anxiety, guilt and restrictions experienced after the 24th week of a risky twin pregnancy.

Between trial, error and frustration, this testimony shows how learning to use insulin made it possible to regain control of gestational diabetes with cystic fibrosis.

Between cystic fibrosis, twin pregnancy and gestational diabetes, this testimony tells the story of the nutritional impasse, maternal guilt and the relief of finally finding a suitable solution.

A testimony on the fear, medical follow-up and fragility experienced during a high-risk twin pregnancy.

With the arrival of free fertility treatments, insemination #3 marks an important turning point, between heavier hormonal therapy, health impacts related to cystic fibrosis and awareness of the need for psychological support.

Between renovations, overwork and fertility treatments, I tell about the personal and emotional context in which I experienced my first inseminations when everything seemed to go quickly.

When living with a genetic condition such as cystic fibrosis, the desire to have a child involves a profound reflection on the risks of transmission, informed by medical genetics and personal choices.

This blog brings together personal posts that tell, step by step, the journey of a woman living with cystic fibrosis through infertility, fertility treatments, options for starting a family and the reality of a risky pregnancy (and then motherhood)

A rich, varied and well-adapted diet is essential in cystic fibrosis to support growth, lung function, resistance to infections, and overall health.

An awareness-raising article that explains the effects of alcohol in people living with cystic fibrosis and offers concrete guidelines for responsible consumption.

A practical guide to understand why and how to increase salt and fluid intake when living with cystic fibrosis, especially during periods of physical activity and heat.

This article explains why good posture is essential, especially for people with cystic fibrosis, and offers concrete strategies to prevent pain, musculoskeletal complications, and maintain respiratory function.

Ventolin is a bronchodilator used to quickly relieve shortness of breath and improve breathing in people living with lung disease, including cystic fibrosis.

A moving testimony about a late diagnosis of cystic fibrosis, motherhood, repeated hospitalizations and the rebuilding of hope in the face of an unexpected illness

An inspiring testimony on the conscious choice to cultivate happiness despite cystic fibrosis and cancer, through self-listening, mindfulness and grounding in the present moment.

A powerful testimony about waiting for a transplant, the loneliness of the disease and the hope regained thanks to medical advances and organ donation.

A sincere testimony on self-acceptance, listening to the body and the importance of setting limits to live better with cystic fibrosis, both relationally and emotionally.

A moving testimony about a multi-year fight against cystic fibrosis, lung transplantation and medical complications, driven by love, resilience and the hope of a new life.

Testimonial from a lung transplant recipient living with cystic fibrosis, about post-transplant, exhaustion, disappointed expectations and learning a new rhythm of life.

Testimonial from a person living with cystic fibrosis about the passage of time, guilt, love, resilience, and building a meaningful life despite the disease.

Testimonial from a lung transplant recipient living with cystic fibrosis, about post-transplant, fatigue, identity, work and learning a new rhythm of life.

A look back at the history of Living with Cystic Fibrosis, from its foundation to today, highlighting the evolution of its mission, its actions and its commitment to the community.

The essential rules to protect the health of people living with cystic fibrosis.