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Research

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Research
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Santé Vous Bien Blog

General

COVID-19 meets cystic fibrosis, for better or for worse?

The data suggests that, despite common inflammatory mechanisms, people with cystic fibrosis may present a form of COVID-19 that is often less severe than expected, possibly thanks to cellular characteristics of CF and the potential protective effect of CFTR modulators.

January 5, 2021
Cystic fibrosis

Cystic Fibrosis: From Top to Top

The Fall 2024 issue of Santé Vous Bien highlights the inspiring journeys of people living with cystic fibrosis, from climbing Mount Kilimanjaro to lung transplantation, sports, literature, and research to show that CF does not set limits to the heights that can be reached.

September 26, 2024
Cystic fibrosis

Health file: Lung transplantation

A file that traces the major advances in lung transplantation for people with cystic fibrosis, highlighting their resilience, the evolution of transplant criteria and the major impact of treatments such as Trikafta.

October 24, 2024
Research

Profile of the CF population in Quebec

Quebec study drawing up a current socio-demographic portrait of people living with cystic fibrosis in order to better adapt services and defend their rights.

February 1, 2023
Research

Research and Cystic Fibrosis: 2022 Update

This 2022 update presents the major advances in cystic fibrosis research, marked by the arrival of CFTR modulators (ETI/Trikafta), their major benefits, emerging clinical challenges and research paths for ineligible people.

February 1, 2023

The story of cystic fibrosis through the women and men who wrote it

A historical look at the evolution of cystic fibrosis through the researchers, clinicians, and committed individuals who have shaped its understanding and management.

February 9, 2022
Research

Antibiotic resistance and Pseudomonas virulence: two sides of the same coin

In people with cystic fibrosis, some resistance to antibiotics caused by Pseudomonas aeruginosa may paradoxically increase bacterial virulence, complicating lung infections and opening the way to new therapeutic approaches.

February 21, 2022
Interviews and testimonies

The approval of Trikafta

The addition of Trikafta to the RAMQ in September 2021 marks a major advance for cystic fibrosis in Quebec by making available a treatment that acts on the cause of the disease for eligible people.

January 25, 2022
Research

Cystic Fibrosis Research: Hope and Challenges

Research has profoundly improved the prognosis of cystic fibrosis thanks to CFTR modulators, with new hope for all patients despite challenges in accessing treatments.

January 13, 2022
Research

The latest research developments

The article presents major advances in research targeting the CFTR protein, with innovative therapies (ivacaftor, lumacaftor and combinations) that pave the way for a gradual correction of the very cause of cystic fibrosis.

November 7, 2018
Health

Vascular access in the treatment of cystic fibrosis.

Vascular access is essential for intravenous treatment for cystic fibrosis, but each type of catheter has benefits and risks that should be well understood in order to prevent complications.

November 7, 2018
Health

New pathogens in cystic fibrosis

New emerging pathogens in cystic fibrosis (MRSA, Stenotrophomonas maltophilia, and Achromobacter xylosoxidans) are becoming more and more frequent, but their exact impact on lung function and survival is still partially unclear.

November 7, 2018
Research

Cystic Fibrosis Research 2014

An overview of major research advances in 2014, marking the transition to treatments that directly target the genetic defect in cystic fibrosis.

November 5, 2018
Research

History Cystic Fibrosis: a 34,000 year old story

An overview of the history of cystic fibrosis, from early ancient observations to modern medical advances.

November 5, 2018
Research

Cystic Fibrosis Research 2016

A look back at the major advances in cystic fibrosis research presented at the 2016 North American Conference, in particular the identification of the CFTR gene and the development of treatments that target the fundamental defect of the disease.

November 5, 2018
Psychological help

Cystic Fibrosis in Adulthood: Balancing Care and Quality of Life

A study explains how adults living with cystic fibrosis seek a balance between quality of life, psychosocial adjustment and adherence to demanding treatment, influenced in particular by the perception of the disease, the feeling of coherence and the relationship with the health care team.

November 2, 2018
Research

The year of all hopes

The year 2017 marked a major turning point in cystic fibrosis, with promising advances towards combination therapies capable of correcting the genetic defect in the majority of people affected.

June 28, 2018
Organ donation

Louis Plante: our tributes!

Inventor of the Frequencer and a leading figure in the FK community, Louis Plante leaves a lasting legacy of innovation, courage and hope.

April 10, 2017
Research

Equality for all!

Scientific advances in cystic fibrosis are major, but access to treatments remains unequal. A call for equity and mobilization.

March 18, 2017
Studies

Study on the psychological needs of adults living with cystic fibrosis

A Canadian study that reveals the importance of mental health needs and the lack of access to psychological services among adults with cystic fibrosis.

March 14, 2016
Results for the category
Research
in

News

Research

Quebec announces neonatal screening for cystic fibrosis

Quebec is finally implementing neonatal screening for cystic fibrosis, a major advance that will allow for earlier diagnosis and better health outcomes in the long term.

October 12, 2018
Research

Pre-transplant nutritional status: a new study

A study shows that BMI and pre-transplant nutritional support do not have a significant impact on short-term post-transplant outcomes in people with cystic fibrosis.

July 11, 2017
Research

Cystic Fibrosis Research: Major Advances and Persistent Challenges in 2015

A review of the scientific advances presented in 2015 highlights the progress of therapies targeting CFTR, in particular Orkambi, while highlighting the challenges related to their effectiveness, accessibility and cost.

January 27, 2016

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