Category:

Interviews and testimonies

An intimate and touching story of the very end of a twin pregnancy resulting from IVF, between physical discomfort, gratitude, impatience and the joy of waiting for two healthy little boys.

A moving testimony of a first IVF experienced with cystic fibrosis, between hopes, medical trials, embryonic failures and resilience in the face of waiting and uncertainty.

The inspiring story of Marc-Antoine Pelège, an athlete and osteopath living with cystic fibrosis, who tells the story of his ascent of Kilimanjaro step by step as a symbol of overcoming, resilience and hope for the entire CF community.

An inspiring portrait of Justin Ducharme, a professional hockey player living with cystic fibrosis, who is turning his condition into a driver of performance and pursuing his dream of reaching the NHL.

An interview with Jean-Christophe Réhel on L'Air d'aller, a bright and daring series that addresses cystic fibrosis with humor, friendship and sensitivity.

An intimate and poetic text on the vertigo of life after a lung transplant, between gratitude, loss of bearings and the search for meaning.

A young adult living with cystic fibrosis shares her adjustment disorder, the anxiety associated with multiple diagnoses, and the importance of recognizing mental health as well as physical health.

A mother's testimony frankly describing the exhaustion, emotional rollercoasters, and lack of support experienced when caring for a child with cystic fibrosis.

A moving testimony of a man suffering from cystic fibrosis, diagnosed late, transplanted lungs, and lucidly recounting the challenges, losses and hopes that marked his life.

Eric describes the multiple bereavements experienced with cystic fibrosis: the announcement, the loss of a “normal” life, the overwhelming role of caregiving, letting go as an adult and, sometimes, the ultimate bereavement. A text about love, powerlessness and the lasting marks of mourning.

Amélie recounts the transition to adulthood with cystic fibrosis: more autonomy, a significant hospital transfer, new responsibilities, but also the strength to adapt and move forward with courage.

Alexie shares the anxiety experienced during long cystic fibrosis hospitalizations and shares simple tips (personal items, snacks, distractions) to better manage stress and isolation.

The addition of Trikafta to the RAMQ in September 2021 marks a major advance for cystic fibrosis in Quebec by making available a treatment that acts on the cause of the disease for eligible people.

Sophie Vaillancourt testifies to the pain and feeling of injustice experienced by people with class 1 mutations, for whom CFTR modulators are not an option, while calling for equitable access to treatments for those who can benefit from them.

Pierre-Alexandre Tremblay shares his inspiring journey as a single man living with cystic fibrosis, lung transplant recipient, who chose adoption as a path to parenthood and testifies to the challenges, emotions and learnings related to this life project.

In this interview, Jean-Christophe Réhel discusses the genesis of What we breathe about Tatouine, the place of cystic fibrosis in his writing, the balance between fiction and autobiography, and the use of humor and popular culture to tell the story of the disease without reducing it.

Manon Goulet testifies that it is possible to live with cystic fibrosis into your sixties by adapting to the disease, redefining your priorities and finding hope thanks to new treatments.

Amélie Payment shares her main tools for managing anxiety related to cystic fibrosis, by focusing on hope, personal goals, rejuvenating activities and gradual preparation for the major stages of care.

Mélissa Doyon recounts her lung transplant journey, marked by waiting, surgery, major complications and a lot of resilience, to show that with patience and perseverance, the transplant can offer a new quality of life despite the challenges.

Positive psychology is a science based on research that aims to develop psychological resources, well-being and resilience based on positive emotions, relationships, meaning, and self-compassion in particular.

A teenager with cystic fibrosis testifies that her adolescence is not “ordinary”, but that by accepting her difference, she found strength, identity and pride in her journey.

A clinician traces the evolution of cystic fibrosis, from rudimentary treatments and very limited survival to major advances in care, research and quality of life, while stressing that despite remarkable progress, the fight is not yet over.

Organ donation saves lives, but its effectiveness in Quebec depends above all on better organization in hospitals and on the fact that everyone clearly expresses their consent to their loved ones.

Sarah Dettmers tells how her personal and family journey led her to become a committed ambassador for cystic fibrosis, between awareness, resilience and the urgency to live.

Diagnosed as a teenager, Charlène shares how she learned to live with cystic fibrosis while achieving her personal, professional and sporting dreams, with determination and hope.

Dr. Yves Berthiaume looks back on his 25 years working with people living with cystic fibrosis and sends them a message of goodbye filled with recognition, humanity and gratitude.

Janie tells her love story with a spouse suffering from cystic fibrosis, a journey made of challenges, fertility, parenting and above all a conscious choice to love and live fully in the present.

Miguel recounts his long journey marked by cystic fibrosis, liver cancer and liver transplantation, an ordeal that allowed him to regain stability and move forward with hope to the future.

Karine tells how, despite a high-risk pregnancy linked to cystic fibrosis and numerous medical challenges, becoming a mother gave her hope, strength and health that she hadn't experienced in years.

Charlène Blais testifies about her journey to motherhood with cystic fibrosis, between infertility, in vitro fertilization and adoption in Quebec.

A teenager living with cystic fibrosis testifies to his daily struggle and calls for equitable access to an approved medication that could slow the progression of his disease.

Receiving a lung transplant at only 15 years old, Odile Lefrancois shares with lucidity and sensitivity how this ordeal transformed her vision of life, the future and the risk of believing in a second chance.

A psychologist living with cystic fibrosis and a liver transplant recipient, Valérie Gosselin shares her journey marked by resilience, social commitment and the desire to humanize health care.

This testimony shows that adoption via mixed banking can be experienced within a reasonable time and become a profoundly positive experience, even after the loss of a pregnancy.

Being a foster family involves close support from the DPJ, strict respect for confidentiality and the creation of a secure cocoon to promote the child's attachment.

After the accreditation, we are waiting for the match call. The time frame varies, but when it arrives, everything accelerates and a new story begins.

Cystic fibrosis does not prevent adoption, but health and medical advice are decisive.

A couple tells the story of waiting for a lung transplant, the call that changes everything, and the strength of letting go when life offers a second chance.

A touching testimony on in vitro fertilization, infertility linked to cystic fibrosis and the long road traveled to realize the dream of becoming a parent.

An inspiring testimony about discipline, self-improvement and the transformation of a dream into victory despite cystic fibrosis.

A human and political reflection on the end of life, autonomy and the role of elected officials in health.

An intimate account of lung transplantation, interrupted adolescence, and the resumption of a “normal” life.

An intimate and powerful letter to the person who made life possible.

The journey of a woman with cystic fibrosis whose hope, love and motherhood come together.

An intimate look at life choices, love, and resilience with cystic fibrosis.

A tale of sorority, lung transplantation, and resilience at the heart of cystic fibrosis.

A look back on 30 years of commitment, humanity and transformation of the reality of adults with cystic fibrosis in Quebec.

A heartfelt final word about motherhood, illness, and the choice to live to the fullest.

When food changes babies' sleep... and their mothers' health.

Waiting for the sweaty test and the relief of a reassuring verdict.

When sickness, breastfeeding, and postpartum collide.

Living and adjusting to nights with twins.

The organization, adaptation, and survival of the first few weeks with twins, while the spouse quickly returns to work.

A testimony about the fragile balance between self-care, motherhood, and cystic fibrosis in the first weeks with twins.

The relief and the sweetness of a reunion after a hectic start to life.

A candid testimony on the challenges of breastfeeding twins hospitalized separately and the assumed choice of mixed breastfeeding

A lucid and humorous testimony on the absurdities of the hospital system, and on the precious humanity of the nursing staff.

An interview that highlights the key role of social work in the psychosocial support of people living with cystic fibrosis.

A delivery marked by the unexpected: distress of the first baby, fight to avoid an emergency caesarean section, birth of the second and maternal complication. A pivotal moment where everything is at stake.

A testimony on the late diagnosis of cystic fibrosis, motherhood, hospitalizations and learning to live differently.

An intense relief thanks to the epidural, followed by a critical moment leading to the birth of the first twin.

Diagnosed at 58 after a life marked by unexplained symptoms, Claire testifies to atypical cystic fibrosis, diagnostic error and the importance of raising awareness about this little-known form of the disease.

Beginning of the birth story: between excitement, medical induction and the gradual rise of contractions, this first part tells the story of entering labor and the first hours in the hospital.

How to build a birth plan when pregnancy is at risk and when priority is still the most important thing.

Despite a risky pregnancy marked by anxiety, this assessment looks back on a surprisingly smooth experience, physically and emotionally, until the very last weeks.

Interview with an ENT specialist in cystic fibrosis to better understand the role of the sinuses, common problems in people with CF and treatment options, including surgery.

A testimony on the conscious choice to live better at the end of a risky twin pregnancy, between improving health, good medical news and refocusing on well-being.

When the body feels better, the mind follows: this testimony explores the unexpected effect of intravenous antibiotics on well-being during a risky pregnancy.

Between forced rest, guilt and hyperactivity on the part of the spouse, this testimony shows how organization and communication make it possible to function as a team during a risky pregnancy.

Through the ordeal experienced by another woman with cystic fibrosis, this testimony shows how comparison can sometimes become a source of perspective, gratitude and strength.

A testimony about the persistent anxiety, guilt and restrictions experienced after the 24th week of a risky twin pregnancy.

Between trial, error and frustration, this testimony shows how learning to use insulin made it possible to regain control of gestational diabetes with cystic fibrosis.

Between cystic fibrosis, twin pregnancy and gestational diabetes, this testimony tells the story of the nutritional impasse, maternal guilt and the relief of finally finding a suitable solution.

A testimony on the fear, medical follow-up and fragility experienced during a high-risk twin pregnancy.

A testimony on a risky twin pregnancy, waiting in the emergency room and the fear of a miscarriage.

Christine shares the experience of loving a man with cystic fibrosis: love, fear, powerlessness, but above all the life chosen in the present. A touching testimony on the role of loved ones.

Boy and girl? Not when the twins are the same! This text explains, in an accessible way, the different types of twin pregnancies, the role of genetics and the particularities of identical twins.

Follow-up of a high-risk pregnancy in a woman with cystic fibrosis pregnant with twins.

Pregnancy with cystic fibrosis, the fear of medication and the importance of putting your health first.

What if love and health were not rewards to be expected, but states to be cultivated? A sensitive reflection on self-love, openness to life and the meaning of the trials we are going through.

A testimony on cystic fibrosis, overwork, work stoppage and lung transplantation, between the quest for performance and the redefinition of oneself.

A testimony about cystic fibrosis, mental health, and the inner strength needed to transform your life, one step at a time.

Interview with journalist Harold Gagné about his career, his commitment and the importance of organ donation for the CF community.

Analysis of the effects of Bill 20 on access to assisted reproduction for people living with cystic fibrosis in Quebec.

A lucid testimony on the psychological, financial and social challenges experienced after a lung transplant.

A nuanced look at sexuality, relationships and fertility when living with cystic fibrosis.

Testimony of a woman pregnant with twins confronted with the limits of adaptations to work in agriculture and with the decisions of the CSST.

A twin pregnancy resulting from in vitro fertilization involves close medical follow-up due to increased risks, in particular prematurity and placental complications.

A viability ultrasound reveals a twin pregnancy resulting from a single transferred embryo, marking a moment that is both happy and full of medical uncertainty.

A reflection on the concept of “letting go” often imposed on people living with infertility, and on the real emotional journey leading to acceptance and openness to other parenting projects.

A testimony recounting a third attempt at in vitro fertilization experienced in emotional exhaustion, marked by measured hope, medical constraints and the personal need to close one chapter before opening another.

A clear overview of the various options considered for starting a family after unsuccessful fertility procedures, including international adoption and adoption in Quebec.

Adoption in China appears to be a path offering greater certainty of success, but at the cost of significant waiting times and complex choices, especially in terms of specific needs.

Faced with the limitations of fertility treatments and the ethical and personal challenges associated with gamete donation, adoption seems to be a meaningful option for some couples.

Addressing the possibility of egg donation to people around you raises complex emotional, ethical and relational issues that require reflection, respect and informed consent.

After the failure of the first embryo transfer and the fragmentation of the embryos, a medical meeting opens the way to reflect on possible causes and future options, including continuing trials or using a donation.

The detailed course of a second cycle of in vitro fertilization, from hormonal stimulation to embryo transfer and waiting for the result.